Thursday, September 13, 2018

What's happening these days.

To start with, I'm actually seeing people and hugging them.  That might not seem like a big deal for most people, but when you've been isolated for a long time, it's huge!!  I've missed seeing people and it's so nice to talk to people in person.  There have been a few times when friends haven't recognized me right away, because of my weight loss and wig, but it doesn't bother me.  Actually, it's kind of amusing.  It also makes it easy to hide and be anonymous, if I choose to be.  That really only works if I don't smile or speak.  Ha!!

I'm eating a little better even though food still tastes like dookie a lot of the time.  The things that taste especially bad are: bread, meat, most cheeses, pasta and potatoes.  Things that taste okay are: fish, vegetables, soup, pickles, some eggs and ice cream.  This makes me wonder if my donor is a pescatarian.  The most annoying thing about this is my new dislike of pasta and meatballs.  I fear losing my Italian card if this isn't remedied soon.  The struggle is real!!!

I'm seeing my doctors a little less often these days.  I'm down to every 2 weeks now and hopefully, the next time I go to Boston, Dr Mac changes it to every 3 weeks.  In about about 6 weeks I start getting all of my childhood immunizations again...for the third time.  It will take about 2 years to complete, so I am extremely cautious around children and sick people.  They are still trying to regulate my anti-rejection drug, because we suspect that I may have had a little graft vs host in my liver, but my enzymes looked a little better last week.  I'm getting my strength back slowly, but the exhaustion is difficult.  I almost said tiring instead of difficult.  That would have been funny.

Here's my big news, are you ready?  No more diarrhea!!  No more squirts or throwing away unders!!  All is well on the southern front, finally! Phew or should I say PU! I'm glad that shit is finally over. Here is my slight dilemma.  The chemo can cause some skin discoloration in various places.  I have a couple marks on my cheeks (face) and one above my eye and a big one on the top of my head.  The one on my head is the most disturbing because it is in the shape of... how do I put this delicately?  Okay, I'm just going to come out with it!  It's shaped like a phallic symbol.  There, I said it!  And I know what you are all thinking, but a member of my family has already called me a d__k head. 
That's all for now.

Peace out Peeps!