Last month I had to visit my Yale doctor just so he could order a PFT (pulmonary function test) for me. I asked him if one of the side effects of my anti-rejection drug was hair being f'ed up. He said he didn't know so he began typing away on the computer and it looked like he Googled it!! Maybe there's a medical Google?! I mean, I know how to Google! He proceeded to say that it is known to happen about 35% of the time. Of course I'm in that category! The weirder or less common something is, it seems to find me. It has worked against me a few times and in my favor a few times. I like my Yale doctor and he was happy to put in the order for my test.
The test itself was done in Danbury and it's basically just breathing into a tube in certain patterns. One portion has to be done in an enclosed glass box. I'm not claustrophobic, but the guy doing the test told me that people do pass out occasionally. I assume my results were okay because I never got a call from either doctor.
My labs looked a little off to me last month, but no one seemed concerned. That's okay because I was concerned enough or everyone! I never really ever stop worrying. After the first transplant, I was convinced that I would always be fine, but after the bottom fell out last year, I'm never comfortable. I hope I will get to that point again some day. I doubt it! Once you have relapsed, I don't think you ever relax again. I don't dwell, but it is there hanging out in the back of my mind. The sense of security and complete health is gone forever.
Good news...my labs looked better this month!! I can breath for another month!! Next month is Boston and with any luck, my meds will be lowered. I hate the yellow liquid I take every night, but maybe now that I finished my shots, they'll take me off. Fingers crossed!!
I almost forgot, the rude scheduler from my doctor's office, is no longer there. Hip, hip, hooray!! The new guy is very nice and pleasant!!
Enjoy this amazing weather.
Peace out Peeps 🐥