Boston Visit Today

I think today is the first time I've been able to breath in 3 years!!  My labs are getting better all the time.  Platelets are in normal range and one of my liver levels is normal and another one is almost normal.  Holy crap!  My doctor lowered my anti-rejection drug to one pill a day, which means I don't have to stay awake if I'm tired at night, I only have to take the morning pill!  No, not the morning after pill.  HAHA!  Here's the other exciting news, I don't have to go back to Boston for 6 months!  Yes, I said 6 months.  I almost burst into tears from all the good news.  I haven't heard this much good stuff in so long, I was beginning to feel like I was never going to get really better.  Now, I know I'm on my way.  I can't even describe how I feel this afternoon.  There has been such a heaviness in me for so long and now I feel like it's lifting.

I think between Lee getting me out and about on the weekends and this stand up comedy workshop I'm taking (laughter is the best medicine),  my body is healing...finally!
I'm going to rate this post like I do restaurants.

Rating: 😂😂😂😂😂 5 faces with tears of joy!

Peace out Peeps! 🐥

Pulmonary Function Test results

My Boston doctor sent me an email earlier this week and told me that my blood work looks good and my pulmonary function test (PFT) was better now than it was in April.  That is great news because it means that I don't have GVHD in my lungs!!

I'm still struggling with fatigue, but the more I walk the better I seem to feel.  It's still a struggle.  I always try to remind myself that it could be a whole lot worse and I'm doing pretty well considering my body took another substantial hit.  Tired I can handle.

I've been taking a stand up comedy class, so I spend a lot of time writing.  It's keeping my mind busy and it gives me something fun to do.  It may be the best thing that has happened to me since the tick bite and transplant.  For the first time in almost three years, I'm starting to feel like myself again.  My teacher and the people in my class are great.  I literally spend two and a half hours once a week laughing my ass off.  They will never know how much they have all done for me. Every single one of them are some of the funniest people I've ever known and on top of that, they are all so nice. I didn't even realize how sad I was until I wasn't sad anymore.  I'm so glad that I followed my gut and took this class.  I may take the next one too!!

Peace out Peeps 🐥