Thursday, July 23, 2020

I emailed Matthias

Some people have asked me if I've been in touch with my donor yet and the answer is, kind of.
I sent an email to Matthias on July 5th, but unfortunately, I haven't heard back...yet.  I'm thinking that there is always the possibility that I received the wrong email address or it went into a spam folder or he changed his mind about getting in touch.  I'm also hoping nothing is wrong with him or his family.  My next step is going to be to write him a regular letter.  I don't want to be a stalker recipient, but a quick hello would be nice.  This is hard, especially because a part of me always thought that he wouldn't want to be in contact, but he signed the consent.  I'm not freaking out, I'm just very curious.  He doesn't owe me anything...I mean he saved my life, so he's awesome!  I really don't have any idea what is happening over in Germany with this shit show virus, so that could always have something to do with not hearing back.  Time will tell.

On a brighter note, Monday is my Zoom Virtual Comedy Showcase!!  There is going to be all new, hysterical sets from all of the comedians and as my awesome teacher, Christine O'Leary says, "We are doing the pandemic pivot"!  The advanced class had their Zoom Virtual Showcase last night and they rocked the comedy world.  Hopefully, we can do the same on Monday night.  Anyone reading this regardless of where you live, or if you are wearing pants,  can all be a part of this new phenomenon for only $20.00.  Yes, I said $20.00, and it's fun!!  Remember fun?  This isn't a show for the kiddos, so put them to bed early on Monday night, have a beverage, a snack and a little cuddle with your significant other or yourself and just sit back and laugh.

Peace, face masks, and laughter 😷😂🎤

Here's the info:


Thursday, July 2, 2020

BIG News!!!

Hey Everyone! 

Today was my two week check-up in Boston.  Dr. Mac is happy with my progress and said that most things are about 50% better.  (Not the big news)  My liver enzymes came down by almost half, which was one of the things I was most concerned about. (Still not the big news)  The lower forty is doing better, my skin is improving,  my mouth sores are almost gone and swallowing is a little better. (Still not the news)  My meds are being adjusted a little and...I'm coming back!!! (Not the news)

While I was there, I asked my doctor if he had heard anything about my donor yet.  It's only been 6 weeks, so I wasn't expecting anything.  He hadn't heard a thing and he said he would check with Nina, my coordinator.  Many of you don't know that I originally didn't want to be in touch with my donor.  It is absolutely impossible to thank someone for saving your life!  There are no words!  I did send him a gift on the first anniversary and wrote him a poem, but nothing does the job for an appropriate thank you.  I had pretty much decided to let it go.  Then, as the two year anniversary was approaching, my feelings changed.  I needed to know who this man is and why he would do this for a stranger in another country. I signed the consent.  I've been petrified that he wouldn't sign the consent and he didn't want to know who I am.  I was convinced that he would always be "Hans"  to me, my wonderful mystery man.

Lee and I got home from Boston at about 1:20 this afternoon.  Lee was checking his phone and I was looking up something for a comedy routine on my phone when I heard the little "You've got mail" bing.  It was from Nina.  She just received some news for me.  He signed the consent!!!!  I now have my donors name, address, phone number and e-mail!!!  I read his name and burst into tears.  I was sobbing as I was trying to tell Lee about the e-mail.  I held my couch blanket up to my face and just cried.  I'm not sure why I had such a reaction, but I cry every time I tell someone about this.  I now know the name of a big part of me.  I'm finally complete!  His name is Matthias.  Isn't that the most beautiful name you've ever heard in your whole life?  Okay, maybe not for you, but it truly is for me. 
His birthday is in a few days, so I think I will wait and send him an e-mail then.  That's if I can wait.
That's the BIG News!!!  Now to find out what he looks like.  I'm glad that I have a decent head-shot to send if he asks.  I don't want him to see this GVHD mess.  I don't care what he looks like, I just want to see his beautiful, generous face!!

Peace, face masks and awesome donors! 😷

My new swarovski watch that I've wanted for a long time.