Rollercoaster Ride

Howdy,

To get you all up to date, I had the stem cells put in my eye.  The procedure was not bad, but the aftermath has truly sucked.  I don't notice the cells, it's the friggin lens they put in my eye that is brutal.  Actually, between the swelling and the pain my eye is barely open, so if my spelling sucks or something doesn;t make sense, it's not my fault!  I can't fucking see!!  I saw (well not really saw) my eye doctor to get everything checked and he said I'm progressing, so that was ok news.  I go back on Monday again and the devil of a thick lens should be coming out. This has not been a pleasant experience.  I should be used to unpleasant experiences by now, but this not seeing well bullshit has really dampened my life.  FU covid, FU GVHD, FU my big fat steroid face and lastly, for those of you who live in Danbury, FU John Oliver!  I just cracked myself up!😂

I do have some really bad news to share for those of you who don't already know.  My sweet husky Jimmy passed away on Monday.  My heart is broken and that's enough on that subject because crying hurts my fuckin' eye!!

Peace, face masks and hopefully better days to come. 

Saw Boston Doctor on Tuesday

Hello,

Well, my eyes still feel terrible and I hope the stem cell thing on Saturday helps.  Dr. Mac was surprised that the skin GVHD is still on my face and we both suspect that it may scar.  That's not really a big deal, because I can always cover it with makeup if I want to.   I gained weight from these stupid steroids and my moon face is very round.  I wonder if there is such a thing as moon butt, because I think I have that too.  I told Dr Mac that i don't have roid rage, I have roid weep.  I cry every day, so I'm ready to be off of this shit.

My blood pressure and heart rate are both up from all the anti-rejection meds, so I'm going back on blood pressure meds and my anti- rejection was increased.  I don't feel like I'm going in the right direction with this thing.  Honestly, I'm feeling a little discouraged.  The new anti- rejection (there are 2) is causing extreme exhaustion.  So...my eyes hurt so bad that I have to close them often and when I do I tend to dose off.  This is crazy.  It's very uncomfortable to be in the sun, wind and heat, because my eyes feel like they are on fire.  Same thing when I try to cook dinner and the heat comes up from cooking.  

Another tough side affect from my meds are muscle cramps, mostly in my feet and hands.  My fingers cramp so badly that they feel like they are dislocating. Last night I had to stop eating dinner because I couldn't hold my fork.  Chopping is a nightmare.  I need a chef!!  Sometimes, my toes will cramp and I'll drag my foot like Quisimoto.  I'm telling you, I am one hot looking chick with my moon face and ass, my scars, my sore red gums, my swollen flaming eyes, constant diarrhea and my funky fingers all while dragging my foot behind me.  What a sight I have become!! Woo Hoo!  Don't be jealous.  

I don't share this stuff to get sympathy.  I write this so other people going through something similar, don't feel alone.  I also feel like it's important to educate people on this stuff.  I know that I'll get through this, even if I'm a little battered and bruised.  It's all more fodder for writing comedy and believe or not, some very funny crap has happened.  

My fingers are starting to cramp so I'll fill you guys in after the amniotic stem cells on Saturday.  Please say a little prayer for my eyes.

Peace, face masks and health 👀😷

My eyes suck

Hi Everyone,

This will be a short post, because my eyes suck and it's difficult to see.  The GVHD in my eyes is not getting better so I will be getting amniotic stem cells in my left eye in about ten days.  They put the cells in my eye and then a contact lens over them for about 2 weeks.  It's kind of interesting.  Incredibly enough these will be the third stem cells, other than my own, to enter my body.  Can we all say freak of nature!!  Can we all say thank God for this science!!  

My other GVHD stuff is improving.  My mouth is better, but my gums are still sore.  I'm still having some trouble swallowing, the lower region is much better and my skin is improving.  I'm also heading to Boston for a recheck this week and hopefully my liver and kidneys are handling all these meds okay. 

I'm not looking at Facebook or my phone very much, because, honestly, it really hurts.  If anyone wants to talk to me please call, because it's easier for me.  My eyes have dry patches on the cornea so sunlight or any bright light really bother me.  Believe it or not, it's hard to cook because of the heat from the stove or oven and I have some double vision so chopping is an adventure.  I guess this is just another learning experience for me and hopefully this blog can help someone else going through something similar know that they are not alone.

Yes, I did do the Virtual Zoom Comedy Showcase last week.  I'm not thrilled with my performance, but the other comedians were absolutely amazing!!

Peace, Face masks, and Missing People