Oh CRAP!!

 Hey all,

I had my checkup at the eye doctor and the amniotic stem cells are not working.  My left eye is right where I started.  I went through 2 weeks of pain for absolutely nothing.  Saying I'm discouraged is an understatement.  There are definitely times that I kind of wish that I never had the 2nd transplant and then I think about all the things I would've missed if I didn't do it.  I'm really getting sick of this whole thing.

Anyway, now we are trying plugs in my eyes.  They don't hurt, but I can feel them in there.  I'm sure that is from my eyes being swollen all the time.  If this doesn't work, there is another thing I can try, unfortunately, insurance doesn't cover the last resort. (I need to read more about it before I try to explain the next step)  I'm really hoping and praying that the plugs and meds do the trick.  I've lost some hope that all this will ever be resolved.

Even though I'm sad, please know that I'm not giving up. I'm just allowing myself some time to feel sorry for myself.  It won't last long.

Peace and Face Masks😷

Eye Doctor and Boston last week

 I have some decent news for a change.  First the eye doctor.  My right eye is much better and my left eye, the bad eye, is healed from the cornea scratch, but it's still not great.  I was actually able to drive myself to the eye doctor, which was awesome!!  I was free if only for a few minutes.  Initially, I didn't drive because Lee was home for months and there really wasn't anywhere to go and then I didn't drive because of the pain in my eye.  I'm able to keep both eyes open now and with my glasses on, I can see!!  Yippee!  Anyway, we are trying the medications for another week and if that doesn't help with the extreme dryness in my eyes, we are having those plugs put in my tear ducts.  I'm willing to try just about anything at this point.

On to Boston.  All of my regular labs look good and my liver is improving!!  It seems like the GVHD is not showing any new signs and is improving most places, but it is taking time.  It is still visible on my face and chest and under the boobage.  My mouth is better, but my gums are still pretty sore.  My doctor lowered my steroids again and with any luck this won't cause a flare up.  I'm hoping that my moon face and butt and neck and mid section will go away and have been caused from the steroids and not golden oreos. Fingers crossed!  Damn golden oreos, why are they so delicious?!

Peace, Face Masks and looking forward! 😷