Howdy,
I guess I'll start with my eye doctor. Well, my permanent plugs that were put in my eyes fell out. Not so permanent, LOL! Next step, autologous serum tears. I give blood and the red blood cells and clotting factors are removed to make eye drops for me. It's fairly successful, but it isn't covered by insurance. I think that it's about $100.00 per month. Yikes!! Maybe this is where the term "bleeding money" comes from. It's literal!!!
On to the Boston appointment. It was okay. My liver is almost in the normal range, which is good news. My red blood cells aren't great, which could be from my meds and would explain my exhaustion. Most of my GVHD seems to inactive. I'm still having some mouth issues, my GI tract acts up and the muscle cramps are crazy! The anti-rejection medications are making my fatigue worse and that's what is causing the muscle cramps. I get them in my fingers, legs, toes and back. When I told my doctor about the cramps in my back, he said that is unusual (of course it is) and those are large muscles so it must really hurt. LOL! Yes, it does hurt.
I discussed the serum tears with Dr Mac and I asked him if it was okay to use my own blood because, let's be real, it's kind of shitty. We laughed. We always have the serious part of the conversation first and then all bets are off. My doctor and I always end up laughing. Anyway, my steroids were lowered again, but everything else is the same. I'm all set for Halloween with my Nick Nolte hair, my funky looking eyes and my very round moon face. Uncle Fester has nothing on me and I don't even need a costume! Boo! I hope life gets back to normal fairly soon and I wish you all good health.
Peace, face masks, and Halloween! 😷🎃
