Sunday, November 29, 2020

CoVid Saga, Part one 11/29

 Hey Turkeys,

I'm writing this to let people know what this blasted virus is like and I also want to keep track for book number 2.  So much has happened in the past three weeks, but I would like to start with something positive

The nurses and PCTs at Danbury Hospital are amazing.  Their circumstances are beyond trying and through it all they were fabulous!!  I was treated with care, dignity, warmth and they fought for things I needed.  They even made sure that I had food, if I didn't order anything.  Very bad food!!  These young women and men came into my room everyday with encouraging smiles which was comforting.  They helped me do everything, and I mean everything!  I believed that they were doing good work, but to see it in person, is truly awe-inspiring.  They were my rocks.  Thank you to all of the people who cared for me so wonderfully.

I was going to say something about the doctors...next post.  Only positive today!

Peace out Peeps



Monday, November 2, 2020

Another Bump in the Road

Hey All,

When I said another bump in the road, I meant it figuratively and literally.  That's right, the GVHD in my mouth is back, but not as bad.  The back of my tongue felt funny and when I looked in my mouth, I saw a bunch of white bumps...so gross.  I'll try to describe the feeling.  It's like eating something gooey (like fig newtons)  and it gets stuck on the back of your tongue so you drink something or do a quick finger sweep.  Oh come on, you know some of you have used the finger sweep, you can't kid a kidder.  Anyway, I feel like something is stuck all the time and the bumps are also down my throat.  Not painful, just annoying.  As soon as I noticed the bumps, I called my doctor and my stupid steroids were upped.  Call me moony moon moon face... and body.

I do have a little rant to share.  No, it's not about politics, because nobody got time for that!!  In the past couple weeks a few people have said to me that they didn't share their problems with me because I have enough on my plate.  Well, that's bullshit and it really pisses me off!!  I'm already completely isolated from my friends and family, so does anyone really think it's a good idea to isolate me more, to eliminate me from your lives?  I'm not a fragile china doll and I have proven that on more than one occasion. Do you want me to stop telling you things, because that can be arranged.  I've heard stuff like,"You have enough on your plate". I say, "So what"! Am I supposed to sit around here and wallow in self pity?  Ridiculous!!  BTW, I'm really sick of myself and all my crapola.  I'd like to know about other people and not just the good things, all things, good, troublesome and bad.  So get with it people!!!  I'm a big girl and getting bigger every day.  DAMN steroids!!  When this covid stuff is over, I will be bitch slapping some people if this continues.  PHEW, it felt good to get that off my chest.

Peace, Face Masks and Sharing bad shit! 😷


Beautiful flowers my sister sent to me!