Hello and Happy New Year!
I'll start with good stuff. I've been off of oxygen for a little over a week, which is awesome! Dragging around those tubes and tanks when I went out was getting on my nerves. I kept scaring the dog and Lee kept "accidentally" stepping on the tubing. Hmmm!! I have to check my oxygen quite often to make sure it doesn't drop too low and the doctor wants me to keep the machines a little while longer. I even check in the middle of the night when I get up to pee. Don't bother with the TMI, you know that most of you tinkle in the middle night. At least once!
This is what happened at my last virtual doctor appointment with Dr Mac. My platelets are much better, because they were low 2 weeks earlier. My reds are low, but they are always the last to recover from any kind of trauma. My Jakifi (one of my anti rejection meds) was lowered because that can be responsible for the reds and my predisone was raised. Moon Moon is back! This CoVid screwed everything up and set me back with my GVHD. My left eye is terrible and I have an appointment on Monday to hopefully get drops made. I pray they work, because my eye is pretty painful. The mouth bumps and sores kicked back in, but not as bad. My skin is holding its own and my liver seems okay.
I had an echo a couple weeks ago, because of my breathing and everything was normal! Yippee!!! My heart rate is crazy high and it was running close to 140 just walking to the bathroom so I was put on a beta blocker. Oh boy do I feel better just from that. My oxygen still drops if I walk around too much. Too much meaning, around the bedroom to get clean clothes. It doesn't take much. I can't wait until I'm able to go for a walk. I actually think that day is getting closer all the time. So this is what Dr Mac says, it's a combination of lung GVHD, low red blood cells and cocky CoVid. He didn't say cocky, that was me. The nurses in Boston told me that my doctor was worried sick about me when I tested positive. He kept checking all weekend and I'm pretty sure he had off. We've been together for 14 years, so I guess there's a bond there and we always laugh a lot after the important business has been discussed. He also always checks on Lee.
I will tell the tale of what I went through with the blasted Vid soon. I thought I should give an update first. I didn't realize it had been so long since my last post, but I've been watching TV and taking a load of meds.
Peace out Peeps!
Sadie doing the husky curl!
