Oh boy, one step forward and two steps back. My red blood cells are recovering and my platelets are good. My IgG, which is my immune system, is in the crapper. This means that I need an IVIG (gamma globulin) infusion in Boston, but nothing seems to be getting set up. I've called and emailed a few times, I guess they are working on it. I asked if a nurse could come here and give me the infusion with a pre-med because I always get hives from stuff like that. Maybe that's what they are working on. Needless to say, this is making my isolation even more intense and sad.
My eyes are not getting better with the auto serum. That's only half true. My reading has improved, but my distance vision is a lot worse. It's really hard to even watch TV. Everything is very blurry. I see (well kind of) my eye doctor on Friday. I hate the idea of going into the office, but something really needs to be done soon. I would cry, but I actually do not have any tears, so what's the point. The dry cry is useless. Oh, and I can't taste most food.
I'm not going to lie, I have good days and bad days. Things I really enjoy doing, I'm not able to do anymore. I can't bake, because I don't have enough energy. Cooking dinner is a damn nightmare, because the heat from the stove and oven make my eyes feel like they are on fire. I can't go for a walk because the prednisone has given my wobbly legs. There really isn't a lot I can do these days. Lee does the laundry, dishes, takes care of Sadie and grocery pick up. I sit on the couch, which is molded to my butt, and it has given up under the constant pressure. I want my life back!!!
On the brighter side, I've been having some fun dipping my toe in the acting pool. My old friend, Mary Anne, has FloreyMare Productions with The Opening Night Players, has given me a few parts in the new "Pass The Popcorn" virtual comedy. It will be via zoom on April 2nd and 3rd, 7:00 pm. More details to follow.
One other small note, Moon Moon is thriving and is now working its way into my neck. I'm just so damned attractive these days, but I will keep my chins up (or just one massive chin).
Peace Out Peeps,😷🙏
