Wednesday, March 10, 2021

The Never Ending Saga

 Well, my last labs proved to be interesting.  I had the labs done on a Friday and early Saturday morning, I received a call from the transplant floor at Mass General.  That is NEVER good! My blood sugar was over 500 and I could be in crisis.  I was in a tailspin.  The nurse asked if I have a Primary Care doc and I don't.  Then she asked if I have a local oncologist and I don't.  My PC told me that I have to be a new patient even though she knows that I've been under constant care because of transplant.  I can't even get in to see her until July.  If anyone has a really good PC, who wouldn't be afraid of treating me, please let me know.  I make doctors nervous.  What a bunch of babies!!  Anyway, after I had a minor meltdown, Dr Mac (Boston) called me from his private cell phone at home, and calmed me down.  The prednisone is messing me up and causing trouble.  We are trying to lower it and I was put on yet another pill along with a pill for diabetes.  I think I'm up to 17 or so meds every day.  I've also learned how to do the finger pricks twice a day.  I have charts and alarms on my phone just to try and remember all my medications.  PHEW!

On a brighter note, the diabetes was making my vision worse, so that is improving.  Not perfect, but definitely better.  I also put myself on a diabetic diet and I've lost some weight.  WooHoo!  BTW,  so many thing on the Internet about diabetic diets are contradictory.  I'm doing balanced protein, veggies, fruit and whole grains.  I'm sick of chicken...blah! Chicken sucks!

This afternoon I'm getting my vaccine.  I'm nervous.  When I asked Dr Mac about it he said that they've never had a 2 time transplant patient, who had covid, get the shot.  I'm the guinea pig.  Hey, is that a crack about me being Italian?  I'm offended.  I just wanted to jump on the ridiculous band wagon of being offended by everything.  I better stop talking about that now or else it could be a very long rant.

Please keep me in your thoughts this afternoon, that I get through this vaccine easily.  I think I deserve a break, if I do say so myself.

Peace out Peeps 😷