I know it's been a while, but when I'm in stand up comedy mode, that's all I write. Now that the show is over, I'll be blogging more...maybe.
Here's the dealio. I found my old Danbury Oncologist, with the help of a friend, at Yale, emailed him and he was happy to see me again!!! He isn't only seeing breast cancer patients like the fibbers at Danbury hospital, aka hellhole, told me. I'm surprised that place hasn't gone up in flames with all the pants being on fire!! The awesome part is that my Boston doctor and Yale doctor and eye Yale doctor are all working together. Finally! What a relief to have a team again. I also went back to my Primary Care doc and she's helping out with the diabetes. This crap is hard to figure out.
Oh, I don't think I posted that now I have blood clots in my legs, so I'm on Eliquis. I keep calling it Cialis. LOL! They suspect that this too is CoVid related. When I called the hellhole to make an appointment for an ultrasound of my very swollen leg, they told me they were backed up and it would be 3 weeks. I reiterated the words BLOOD CLOTS!!! It's bad enough that they refused to ultrasound my legs when I was in the hospital for the Vid, but now they wanted me to wait 3 fucking weeks!! No!! Funny how they fit me in in 5 days after I raised my voice and it really wasn't busy when I went there. The tech was actually very good. They refused to let me leave the hospital until they spoke to my Boston doctor and knew I was being cared for with meds. I was ignored and then there was concern. If I blew a clot, those heffers would be so sued.
I really miss doing things and being out in public, but I can't take any chances. I have good days and bad days. More good than bad. My breathing and stamina are slowly improving. I've learned that if I don't get enough sleep, I struggle the next day. My eyes are not getting much better, they burn and sometimes they are downright painful. The newest thing I've tried is moisture chamber goggles when I sleep. Oh, baby, baby, I'm so damn attractive! My mouth GVHD is better and my blood counts looked pretty good last month. The swelling in my leg is going down. All in all I'm hoping all this is a turning point.
Peace out Peeps, 😷 and vax up so I can get out of this damn house!
