Yesterday I had my triple lumen put into my chest in an operating room, then I waited hours for my room to be ready. It wasn't too bad, because Lee and my niece Justine, kept me company. Last night Jimmy visited for a little while and chemo began. One of the chemos is the same one I had last time, except this time it's a larger amount every night for 4 nights. The higher dosage can cause seizures so I'm on an anti-seizure medication too.
I took a video of my room and hopefully I'll get a strong enough signal to post it at some point. I've been told that I have one of the best rooms on the floor. I'll try to describe it. When you walk in there is a station for the nurse to input all the vital information into a computer. To the right are all my sheets, towels, johnny coats and pads for the bed just in case I crap myself. Next to that is my closet to hang some clothes and a safe for any valuables. Next to that is a long shelf where I put my t-shirts and notebooks, a copy of my book (to be a little self-promoting) , adult coloring books and sudoku books. I ❤ sudoku!! My bed is on the wall across from all that and the crapper is to the right of the bed. As you enter the room, directly in front of you is a wall of windows with a couch and chair in front of them. I'm sitting on the couch right now typing. The view is freaking incredible!! I can see the gold dome of the State Capitol, the clock tower at Faneuil Hall and all the planes taking off from Logan airport. I thought it was beautiful during the day and then last night with the skyline lit up...unbelievable!!! Can you tell that I'm enjoying the view?
I had a small bump in the road last night when my blood pressure decided to get very low. Thank goodness it corrected itself. This morning I had some stomach issues after breakfast, but I'm feeling better now. I think my body needs to get used to all the chemo. I took a shower and I'm following my mouth regime, which includes a lot of brushing and rinsing. The food sucks, but I'm pretty sure that is no big surprise! I could't really eat the eggs this morning, they smelled funny, but I was able to eat a couple chicken tenders for lunch. I'm enjoying having all my meals made for me and delivered! I mark off what I want and it appears. Is this what it's like to be a husband? Only kidding...kind of.
They are keeping me very busy here. I'm awaken many times during the night to take my vitals and then I chat with whoever comes in my room. One of my nurse practitioners is a retired Navy Lt. Col. He served in the Gulf War and Afghanistan and his son goes to school in CT. We have quite a bit in common so it was a nice visit. I also had a Chaplain, Eucharistic Minister, a person who cleaned my room and a dietitian. I'll start more chemo at 5:30 PM. I'm feeling confident.
Peace out peeps!
Can you please send me the address again for some reason I don't have it. Sounds like you are settling in and buckling up for the ride. You got this Mary!
ReplyDelete55 Fruit Street
DeleteLunder Building 10-18
Boston, MA 02114
Sounds like all things considering, you're off to a good start! Pretend you're...at the spa (?) haha ok maybe that's a bit much.
ReplyDeleteKeep that sense of humor Mary! I know you will!
ReplyDeleteI'm here if you need to talk!
Hospital food....why can't it just be normal? And hot? Sigh...
ReplyDelete