I received some new information on Friday. I do have a donor match and they have agreed to save my life!!! How lucky am I that I had my sister willing to be my donor 11 years ago and now a stranger!!! So I've had two amazing people step up to the plate for me and I can never thank them enough. There are no words that are appropriate enough to convey my appreciation and admiration to these two amazing human beings.
I will be admitted into the hospital on April 20th and the transplant will take place on April 26th. Hmmm, an April re-birthday, isn't that birthstone diamond. Very interesting...hint,hint. The days proceeding the transplant will consist of lethal doses of chemo. Isn't that a terrible way of saying it? I consider it only being lethal to the MDS. Good, kill that shit! But, be good to me! I will be getting different treatment this time, so I'm not sure what to expect. I'm just going to roll with it. I'm trying to see my friends before my extended leave and I'm organizing some stuff. I'm definitely feeling emotionally better than I was earlier in the week.
The whole terrible experience of trying to get a second opinion came to an end. By the time all the paperwork was checked by Yale, they said they needed more. They wanted things from different departments and it needed to be mailed to separate places and reviewed by them and then I would get an appointment. This nonsense has been going on for weeks. Finally, I said "That's enough"! I was pissed and I decided that I don't want to spend my next 2 weeks running to doctors and besides, I will probably be in transplant before any of it happened. So, I freed myself of one of my stress inducing chores.
The other day I was on the phone with my niece, Meredith, and I was telling her that I wanted a Vera Bradley duffle bag to bring to the hospital, but I didn't really like any of the new designs. She told me to send her pictures of what I liked and she would check out the Vera Bradley outlet near her house in Myrtle Beach. They carry some of the retired patterns. Later that day, I started getting text pictures of duffle bags from Meredith. I liked 3 of them. So Meredith said she would pick one out and surprise me. We were both excited!! I couldn't wait to see what she picked out for me and she was excited to surprise me. This morning my doorbell rang with my package and I was even more surprised than I thought I would be. Not only do I LOVE the duffle she picked out, but She sent me a notebook to write things down for my next book and a very soft scarf to wrap around my head when I'm bald. Meredith also wrote me a note that made me cry! My spirits have been lifted by my incredible niece and I'm going into this with a better attitude than I've had recently. Thank you Meredith, aka BGC!
What wonderful news!! Thank God there are so many caring, loving people in this world. I am so glad that one of them has found his or her way to you and only hope there are many more like them. I hope to see you before you go to the hospital and I will absolutely see you when you return home. Love and healing thoughts coming your way!!
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