Graft Verses Host Disease has exploded

My GVHD has decided to go a little crazy.  The medicine isn't working for my mouth sores, the rash on my face has gotten worse, my lower region stings like hell when I try to pee and poop,  I have red spots on my chest and swallowing is horrible.  Even trying to drink water is like drinking shards of glass.  This has not been fun, but believe or not, I don't feel too bad.  Well, I don't feel too bad as long as I'm not eating, drinking, peeing or pooping. 

I called my Boston doctor yesterday and he put me back on anti-rejection medication.  Hopefully, this does the trick.  The problem with this is, is that it suppresses my immune system and makes me more susceptible to the nasty virus.  UGH!  I keep telling myself that this is only a bump in the road.  I will be going to Boston in a few weeks to get checked out and hopefully get my final immunization.  I'm almost looking forward to seeing Dr. Mac, because he always makes me feel better about things. 

My sister was such a close match for my first transplant, that I didn't experience any of this stuff.  I'm still very grateful that she did that for me.  The good thing about having some GVHD is that the donor cells also attack random bad cells that may be lurking in my body.  All in all, not a bad thing...as long as we keep it under control.  Please keep me in your prayers.  Keep our country in your prayers!

Peace, 6 feet and masking it up! 😷 🙏