It's been almost a week since the transplant and things haven't changed much. All my number have been going down, which is good news, but I have to be even more careful about germs than I was before. My day consists of waking up around 4 AM to have my vitals taken, labs drawn and weighed. This is the time that the stomach cramps usually kick in and the hershey squirts are not far away. I wait until eight or eight thirty for my day nurse to come in with a dosage cup filled with pills. This is different from last time because 11 yrs ago many of my meds were given IV, now they are pills. I guess if I was barfing they would do IV. I may dose off briefly during this time. My nurse and I decide on a good time for me to shower. My care team shows up around 10 AM and they ask me questions, mostly about my poop, and they listen to my lungs. My care team consists of my day nurse, the bone marrow doctor who is in the rotation this week, a nurse practitioner, some woman in a white lab coat (I haven't figured out who she is yet). We discuss my plan for the day. The rest of the day is usually vitals, potty, mouth rinses and sleep. Some days I have company.
So, Sunday was a really bad day. The cramping was so severe, that I had to cancel any visitors. Luckily, the meds made me very tired and I slept most of the day and night. Saturday was nice. My sister, Marlene and nephew, Jimmy visited me in the morning. Jimmy picked Marlene up from the airport and came straight here. There is nothing like family to make a dreary hospital room, home! Marlene was here yesterday too with Justine. Oh my gosh, we were laughing hysterically!! It's amazing how much better you can feel from belly laughing.
I just found out from my day nurse that I need a platelet transfusion today. This isn't unusual, but I do need to shower early, because I have to be pre-medicated. I have a tendency of getting hives from blood and platelet transfusions. That's all for now.
Peace out Peeps
My thoughts are with you. I had muscle spasms. The only good news, is that some day the _ ends. Love you. Keep your spirits in positive. Sunshine and warmth today.
ReplyDeleteYour doing great Mary! Still praying! Love ya!
ReplyDeleteXoxo