I know it's been a while since I've posted, but this transplant shit is no joke. My bad stomach got to the point where I was afraid to move around too much for fear of horrendous cramps and crapping myself. It's been a cocktail of meds, most of which only mildly alleviate the discomfort. It's been hell. My emotions have been all over the place. There are days that I feel happy and days when I question why I put myself through this again. I'm bored, but unable to concentrate on anything. This is one fucked up ride. It's funny, because one of my doctors said that I've breezed through this. Yikes!! I can't imagine what having a difficult time would be like!
I guess I'll fill you in on what's happening now. I'm off of all IV's, which is awesome because it's much easier to get around. It's very freeing to just walk into the bathroom and not have to unplug myself. It's also weird. I keep forgetting that I'm not hooked up to something. The big thing now is that I have to prove that I can eat. This is much easier said than done. Besides not having an appetite, I have a wicked sore throat. I tried to eat a baked potato last night and it felt like sandpaper on my throat. I haven't lost any weight since I've been here, because they kept me on IV nutrition until yesterday. So that sucks!! If I can't prove that I can eat, they won't discharge me. I'm stressed out over it! I just want to go home and put this part of this nightmare behind me. I know that I'm still facing ups and downs, but this part will be over. It's hard spending weeks in a hospital room.
Enough of my damn whining!! So, I'm almost bald now, which means a new wig! I'm thinking something with that lavender grey color. I haven't decided on a style yet, but I know my friend Christie will cut a wig to look cute. Until I'm able to get out into the world, I'll probably wear my brunette wig for a while and really mess with peoples' heads. I have many hats and bandanas to change up my look often. I'll be incognito for a while, so no one better be talking shit about me. LOL!
I'm looking forward to breathing fresh air soon and seeing my family and friends soon. That's what is keeping me going.
Peace out Peeps!
I’m with you my friend. Happy Mother’s Day. I pray for you every day
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