update...finally

Hi everyone,  I apologize for not posting sooner, but I was going through some emotional shit and I was busy being angry for getting sick again.  I'm feeling better now.  I still have angry and afraid moments, but it's not all the time.

Anyway, I was released from the hospital the day before Mother's Day, which I was happy about even though we couldn't do anything.  Just nice to be home.  I've relearned how to flush the three lines coming out of my chest and my dining room table is covered with medical stuff.  I take many pills throughout the day and I'm having a very difficult time eating.  Everything tastes disgusting and I force myself until I feel like barfing.  That usually happens after 4 or 5 bites.  This shit isn't over by any stretch of the imagination.  Last Friday when I went to Boston, I was almost admitted, because my kidneys were not good.  My doctor decided to lower my anti-rejection drug and have me give myself an IV every day for 2 weeks (hydration).  So I had to learn to do that too!  I'm getting tired of this whole thing!  I'm also on a hundred day semi-quarantine.  The 100 days began the day after transplant.  I'm not allowed to be around crowds and I have to wear a mask if I go places.  I'm on a special diet, but that doesn't matter, because I never want to eat.  I also need help from Lee to cover my lines when I want to shower, which is a pain in the ass.  I spend my whole day doing medical stuff and watching TV. Once a week I have a visiting nurse to change my dressing. It's going to be a really long 2 more months.  I don't sleep well at night so I'm always kind of tired.

On a brighter side, I am getting stronger.  I can make myself food and take care of the dogs during the day.  I'm not quite ready to make dinner yet, maybe that will happen next week.  We go to Boston at least once a week and that usually takes a day to recover.  I will try to be better at blogging!  I know people were wondering how I'm doing.  It's going to be a long recovery with bumps in the road, I just need to keep my spirits up. 

Peace out Peeps