Hey everyone! I haven't posted much because there hasn't been much to say. My kidneys are doing better, so I stopped my IVs after two weeks. I'm still not able to eat very well. Most foods are very disgusting and my dry mouth doesn't help much. I live on bananas, pastina, applesauce and chicken soup. I recently added V-8 juice. Doesn't it all sound yummy? I have lost weight (yah!), but this shit sucks. I make dinner and everything smells so good and then I taste it...gross!!! I made tacos the other night, which I love, so I tasted it and I almost barfed. My doctor doesn't seem too concerned yet. He was telling us that there are people who try to eat and then throw up, so he's pretty happy that I keep everything down.
The best news is that I'm getting the lines out of my chest next week, as long as everything stays stable. I will finally be able to wear a bra again!! I also only have to see a doctor every 2 weeks now. Boston the beginning of the month and Yale the middle of the month. Hopefully they will work well together and share all the information. I'm a little skeptical at this point. Time will tell.
I don't think I told you all that one of the side effects of one of my chemos is that your skin can turn black where you sweat. Needless to say, under my arms, boobs, elbows and my nether region have all turned a lovely shade of black and then it all peels. It almost looks like a bad sunburn and then some! I also have some brown skin discoloration marks on my face and bald head. Everything is drooping more than usual, because of the weight lose and I think my muscles have crapped out a little. I am one MFing ravishing beauty these days.
I am feeling better and my energy is slowly coming back. My 100 days is up on August 3rd, and I'll have another bone marrow biopsy around then. That will tell us if this transplant got rid of the MDS. Word of warning, I'm going to be a bitch while I wait for those results. I guess that's it for now. If anything else pops up, I'll share.
Peace out Peeps!
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