Doctor update

Lee and I took another trip to Boston on Monday for my bi-monthly appointment.  My blood work is looking pretty darn good.  My platelets ( part of the blood that keeps you from bleeding to death) is in the normal range and increasing, which is phenomenal!  My liver is also improving, so I was taken off of one of my meds.  Now I only take nine pills a day, including my vitamins, and my disgusting liquid antibiotic.  It looks like mustard and tastes like a rotten banana with pee mixed in. BLECH!!  My doctor was very amused by my rap video and he just kept laughing.  Thank goodness he has known me for over 12 yrs, so nothing I do surprises him anymore.  My next visit is going to be the big one.  They will take more blood than usual, I'll be getting many shots ( I think four) and my 1 year bone marrow biopsy!!  FYI, I will be a nervous wreck waiting for the results, even though Dr Mac said he is not concerned.  I really can't believe it will be a year on April 25th since my transplant.  I'll be asking for prayers as it gets closer.

I'm going to write a note to my donor once I figure out what to say.  I can't give any identifiable information, but I feel like it's time to say something.  What do I say?  Thank you doesn't quite cover it.  It sounds like this stranger handed me a dunkin donut coffee, not his bone marrow.  I'll figure it out I guess.  I did find a small gift for him.  It's a key chain that says, "Because of you, I live". I need to order it so I can bring it to my next doctors appointment.  I'll post a picture of the key chain when I get it.

So, here's a minor cocky thing that's happening.  I hurt my back and hips.  We are not really sure what caused this, but the doctor suspects that I over used my back after not doing much for so long.  I have to say that this crap is very painful.  Advil and a mild muscle relaxer help me sleep at night, but makes me a little foggy during the day.  If it's not better soon, I'll have to call my orthopedic doctor.  I'm pretty good with pain, this is a new level of holy craparooie!!!

One last thing.  I need a new pillow.  This darn pillow is memory foam, but I suspect it has chemo brain, because it doesn't remember dookie.  It still has the shape of my head in it and I've been up for hours.  No, I haven't made my bed yet. I'm in search of a good pillow that isn't huge and actually has a memory. Speaking of memory, I forgot to add something to my do and don't list from last week.  It's about problems with memory.  Was that a good segue? Don't mock or make derogatory comments to someone who is trying  to find a word or jumps in conversation.  I like to say that I'm rolodexing, but my son calls it buffering.  Sometimes it takes time to recall and sometimes there is no recall at all.  My doctor said that medicine still doesn't know all the effects that chemo has on the brain, so please be patient. It's very frustrating for people suffering from this, especially when people don't understand.  It makes me feel stupid, even though I know I'm not stupid and it's not my fault. This isn't just about chemo brain, but it also happens with many different medical conditions.  We need patience and understanding, even though our recall may frustrate some people. 
Talk to you next week... if I remember. LOL!!

Peace out Peeps!