I'm keeping my promise and letting everyone know my results as soon as I found out.
My bone marrow is...PERFECT!!!!
My chimerism is 100% donor!! I'm all dude and German!
Thank you all for your prayers and support. Prayers are so powerful and support is essential.
I'm going to have a celebratory cup of coffee and a Boston cream donut. Ha, Boston cream donut, how appropriate!
💗😀😘
Peace out Peeps!
Monday, May 20, 2019
Saturday, May 18, 2019
No Results
Howdy!
I've had many people texting, calling and messaging to find out my biopsy results. The answer is... I haven't gotten my results yet. Hopefully, I'll hear something on Monday. If not and you see a crazy woman (aside from the normal interesting people in my city), mumbling to herself, possibly singing extremely off key, with a wig on sideways, wearing Halloween pajamas with lipstick and eyeliner all over her face and her ass crack hanging out, it's just me!! There's also always a slight chance of a freestyle rap or the chicken dance. Who the heck knows what can happen when I snap!!!😜 Let's all pray that doesn't happen and I get awesome results soon. By the way, those who personally know me, please stop picturing the description of myself losing my mind. You could be scarred for life.
Thank you everyone for being concerned. You'll know soon after I know the results.
Peace out Peeps! ❤
I've had many people texting, calling and messaging to find out my biopsy results. The answer is... I haven't gotten my results yet. Hopefully, I'll hear something on Monday. If not and you see a crazy woman (aside from the normal interesting people in my city), mumbling to herself, possibly singing extremely off key, with a wig on sideways, wearing Halloween pajamas with lipstick and eyeliner all over her face and her ass crack hanging out, it's just me!! There's also always a slight chance of a freestyle rap or the chicken dance. Who the heck knows what can happen when I snap!!!😜 Let's all pray that doesn't happen and I get awesome results soon. By the way, those who personally know me, please stop picturing the description of myself losing my mind. You could be scarred for life.
Thank you everyone for being concerned. You'll know soon after I know the results.
Peace out Peeps! ❤
Wednesday, May 15, 2019
Waiting for results
This sucks!!! Waiting to hear if everything is okay, is pure torture.
I had my biopsy on Monday in Boston. It wasn't the easiest that I've ever had, but it wasn't the fault of any medical professional, it is my body. Bone marrow biopsies have two parts. First, the hip bone is punctured and some marrow is aspirated (sucked) out of it. It lasts about 10 seconds and if I count out loud, it's not too bad. It's not comfortable, but it's not unbearable. Then, a chip is taken off of the bone for pathology. This is where things went a little sideways. My hip bone may have softened, so the chipper thing kept slipping off of the bone. The Nurse Practitioner is very good at doing this and I didn't even have any pain last time she did my biopsy. This time, she asked a doctor to come in and try. Guess what? He couldn't get it either. They did get 2 small chips so hopefully that was enough for pathology. If not, I have no friggin idea what happens next. I will be having a bone density test at my next appointment in July and then we'll see if I need calcium shots or pills or whatever. That's the least of my worries right now.
Back to waiting...tick tock, tick tock. I'm in a fog. I watch TV and I have to re watch shows because nothing is sticking in my brain. I'll try to explain what it's like waiting for biopsy results, or at least what is happening in my head. Here we go: Where's my coffee? I'm not drinking coffee. Where's my water? Did I get water? Is it in the frig? Oh crap, I didn't get water. Is my cell phone volume on high enough so I can hear if it rings? What if this is bad news? Will I die? My labs look good, so I shouldn't worry so much. Oh wait, my labs weren't terrible when they found the MDS. I can't breath. I'm going to put this in God's hands. What if it's my time? Oh my gosh, I'm getting light headed. Now I'm teary. My hands are shaky. This sucks! FUCK!! Why is all this happening again? I'm going to be fine. I'm so pissed. I need to do laundry. Maybe I'll bake something. Those real (fake) housewives are ridiculous. Stop fighting over dumb shit. My back is sore. Where are the dogs? When is this phone going to ring? I'm afraid of it ringing. I'm so nervous, it's hard to think straight. I'm hungry. I can't eat. Are the doctors discussing my results right now? I'm scared. My nails need new polish. Please God let this be good news. And repeat many times throughout the day and night. For all my friends and family who are dealing with me this week, I'm sorry if I'm grouchy. I can't help it. I have a headache. I'm tired. 💤
Prayers are appreciated.
I will post as soon as I know something.
Peace out Peeps!
I had my biopsy on Monday in Boston. It wasn't the easiest that I've ever had, but it wasn't the fault of any medical professional, it is my body. Bone marrow biopsies have two parts. First, the hip bone is punctured and some marrow is aspirated (sucked) out of it. It lasts about 10 seconds and if I count out loud, it's not too bad. It's not comfortable, but it's not unbearable. Then, a chip is taken off of the bone for pathology. This is where things went a little sideways. My hip bone may have softened, so the chipper thing kept slipping off of the bone. The Nurse Practitioner is very good at doing this and I didn't even have any pain last time she did my biopsy. This time, she asked a doctor to come in and try. Guess what? He couldn't get it either. They did get 2 small chips so hopefully that was enough for pathology. If not, I have no friggin idea what happens next. I will be having a bone density test at my next appointment in July and then we'll see if I need calcium shots or pills or whatever. That's the least of my worries right now.
Back to waiting...tick tock, tick tock. I'm in a fog. I watch TV and I have to re watch shows because nothing is sticking in my brain. I'll try to explain what it's like waiting for biopsy results, or at least what is happening in my head. Here we go: Where's my coffee? I'm not drinking coffee. Where's my water? Did I get water? Is it in the frig? Oh crap, I didn't get water. Is my cell phone volume on high enough so I can hear if it rings? What if this is bad news? Will I die? My labs look good, so I shouldn't worry so much. Oh wait, my labs weren't terrible when they found the MDS. I can't breath. I'm going to put this in God's hands. What if it's my time? Oh my gosh, I'm getting light headed. Now I'm teary. My hands are shaky. This sucks! FUCK!! Why is all this happening again? I'm going to be fine. I'm so pissed. I need to do laundry. Maybe I'll bake something. Those real (fake) housewives are ridiculous. Stop fighting over dumb shit. My back is sore. Where are the dogs? When is this phone going to ring? I'm afraid of it ringing. I'm so nervous, it's hard to think straight. I'm hungry. I can't eat. Are the doctors discussing my results right now? I'm scared. My nails need new polish. Please God let this be good news. And repeat many times throughout the day and night. For all my friends and family who are dealing with me this week, I'm sorry if I'm grouchy. I can't help it. I have a headache. I'm tired. 💤
Prayers are appreciated.
I will post as soon as I know something.
Peace out Peeps!
Saturday, May 11, 2019
Biopsy next week
This will be a very short blog this week. Next week I will be going to Boston for my 1 year bone marrow biopsy and I would really appreciate prayers for a great outcome. I always get very nervous before a biopsy and I definitely am not looking forward to a long drive home on a sore hip. It's not the biopsy itself that freaks me out, it's the results. I may be a little crabby waiting for the call from the doctor. It usually takes 5-7 days before I know anything. I'm thinking retail therapy could be a great distraction. I may need some sandals for the summer. I think I have approximately 70ish pairs of shoes, but they are all different. Oh, I just remembered that I need a new pair of black (chucks) Converse! I love my Converse sneakers. I have pink high tops, blue high tops, white low, white with stars and broken down black. Don't even get me going on my Skechers.
Anyway, Happy Mother's Day to all and I'm grateful to be able to celebrate this year. Last year, I got out of the hospital the day before Mother's Day and wasn't feeling so great.
I'll post as soon as I get the results from my biopsy.
Peace out Peeps!
Here's a picture of my Mom!!😊😘
Anyway, Happy Mother's Day to all and I'm grateful to be able to celebrate this year. Last year, I got out of the hospital the day before Mother's Day and wasn't feeling so great.
I'll post as soon as I get the results from my biopsy.
Peace out Peeps!
Here's a picture of my Mom!!😊😘
Sunday, May 5, 2019
Just stuff
I guess I'll start out with a brief statement about the dog. Her name has been changed to Sadie. The reason we decided to change her name had nothing to do with politics, it's because we found out that it was her original name. Also, our friend, who is a trainer, told us that a shorter name is better. She is challenging at best.
So, a week or so ago, I got dressed to go out and put on my new, cute LLBean cardigan. I had on a white button down shirt and my new sweater over it with 2 buttons buttoned. As usual, I had to pee before leaving the house. I had finished urinating and was drying off the lower region, when a heard a subtle plop. I immediately checked my hands to make sure it wasn't one of my rings or a stone in my ring. My rings were all on my hands and fine. Then I thought maybe a little poop slipped out. I checked and there wasn't any poop in the receptacle. I was baffled. What the hell fell in the toilet? Could it have been an old piece of toilet paper caught in a crevice and loosened up? After getting myself together, I realized it was a button from my new sweater! I was kind of relieved that it wasn't something gross. I flushed it and proceeded downstairs to tell Lee the funny story. His response was, "Did you get it out?" I laughed and said, "NOOO, I'm not putting my hand in a toilet filled with pee!" We both cracked up. I have to admit, if it was a ring, a hand and part of an arm would have been pee infested or I would have sacrificed kitchen tongs for the cause. I guess that would depend on my panic response and if I could think logically at that very moment.
Today is Cinco de Mayo, so I'm going to share a picture of the arroz con pollo that I made the other night. Don't drink too many margaritas! I used to love margaritas, when I was allowed to drink. Enjoy!
Peace out Peeps!
So, a week or so ago, I got dressed to go out and put on my new, cute LLBean cardigan. I had on a white button down shirt and my new sweater over it with 2 buttons buttoned. As usual, I had to pee before leaving the house. I had finished urinating and was drying off the lower region, when a heard a subtle plop. I immediately checked my hands to make sure it wasn't one of my rings or a stone in my ring. My rings were all on my hands and fine. Then I thought maybe a little poop slipped out. I checked and there wasn't any poop in the receptacle. I was baffled. What the hell fell in the toilet? Could it have been an old piece of toilet paper caught in a crevice and loosened up? After getting myself together, I realized it was a button from my new sweater! I was kind of relieved that it wasn't something gross. I flushed it and proceeded downstairs to tell Lee the funny story. His response was, "Did you get it out?" I laughed and said, "NOOO, I'm not putting my hand in a toilet filled with pee!" We both cracked up. I have to admit, if it was a ring, a hand and part of an arm would have been pee infested or I would have sacrificed kitchen tongs for the cause. I guess that would depend on my panic response and if I could think logically at that very moment.
Today is Cinco de Mayo, so I'm going to share a picture of the arroz con pollo that I made the other night. Don't drink too many margaritas! I used to love margaritas, when I was allowed to drink. Enjoy!
Peace out Peeps!
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