Monday, March 23, 2020

Update on concerns

I have been wondering if being a bone marrow recipient changes the effect of this virus on myself, if God forbid, I become one of the afflicted.  The answer is ...yes, it would be bad.  I'm almost two years out from transplant which is good, but I'm still on an immunosuppresant which isn't good. I'm only on a small dose now, but I still need to be extremely diligent and so does my family in keeping this thing at bay.  I'm very grateful to BMT infonet for putting together information with transplant doctors from MGH, (my hospital) so I have an idea what is happening.  MGH is going through every transplant patient.  Of course those recipients in their 100 days are the primary concern.  Doctor appointments are being postponed for those of us further out and so are immunizations.  I was due for my two year check-up and shots in April, but I'm pretty sure that isn't happening for a while.  April 25th is my 2nd bone marrow-aversary! Looks like I'll be making my own bone marrow-aversary dinner at this rate. Gifts are welcome!  I'm kidding!! Or am I?  😂

I was going to sign the consent to be in contact with my donor at my appointment.  I will not be bothering MGH with that at this point.  They have very ill patients who need their attention, but if any hospital knows how to deal with bad shit, MGH does.  I will learn Hans's true identity when and if the time is right.

I do have a request for prayers for my donor in Germany (Hans).  I don't know who he is, but I'm very worried about him.  I feel like he is a member of my family that I can't get in touch with and I can't check on him.  The only thing I can do for Hans and his family is ask for prayers of health and love for my far away genetic twin.

Peace, Prayers, Health, Gratitude, and Elbow Bumps 😷

PS One good thing about everyone being home is that my blog is being read more.  Man, people must really be bored!

Sadie being cute this morning!


2 comments:

  1. Stay strong Mary! Thugs is a tough time especially
    for people like us... love you! XOXO

    ReplyDelete